My Blog

I have decided to start a blog. Many people with illnesses such as Fibromyalgia and ME always have to put a brave face on. Many people say to us "we look well!" "pull yourself together!" "Nobody can have that many symptoms!" "Just take a tablet!" "You are being negative!" "You need to change your way of thinking!"

What many don't understand is we suffer in silence! I have always agreed happiness is the best medicine. However, when you can't get the right treatment and benefits it is hard to keep that smile! I feel it is important to keep a blog to show that people are not on their own!

I am frustrated as I am back on crutches without weight on one foot. I am stuck at home can't even get down the stairs to the front door to collect the post. Within the space of 10 days last week I had to see 2 doctors, one specialist (private) and a physio. I even said to one doctor sorry for being such a pain! He was very nice and said he was here to help.

The physio says that I need to do exercise for the knee suffer with hypermobility and arthritis. How can I attempt any exercise now when I have tendonitis in the foot on the same leg. I have been put on complete rest. I am not sure if it is due to regular spasms I get in my big toe, foot and calf. When I was having regular treatment from a specialist (private) every four weeks my quality of life was better. Last year I was only able to have treatment twice. The PCT won't help me!

Please can someone listen to us! We need treatment!

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first posting crutches

First message by Fibro Babes